Please pray...

Please join us in prayer for the sweet life of Moriah Nelson and her amazing, strong, resilient parents Victoria and Justin. While we have never met in person, we have been brought together through the CHARGE community. I have seen so many similarities in our lives. Victoria and Justin's relationship reminds me so much of Phil and I- the way the two look, how they seem to deal with the stress of having a chronic child, and their determination to keep life as normal as they can. However, everyone has a limit. They have been stretched to that limit for way too long. We follow their blog daily, and our hearts ache for them as we recall similar events we had with Josh, and our hearts celebrate every moment they share as baby, daughter, mother, father, and family.

Please take a moment to look at their blog: momentswithmoriah.blogspot.com and see what an amazing family they are and the journey that have been on. Their most recent post hit me in a spot that I can't shake off and continue with my day. They are desperate right now. Moriah has been in the hospital for the past 10 months, always anticipating to go home but then sidelined with some infection that no one can seem to figure out. It is a most frustrating place to be. Josh had a similar situation towards the end of his time on earth where no one knew why his labs were out of whack, and outside of that he was absolutely fine. We felt like he was being held hostage in the hospital. On top of it, bills continued to pile up from his NICU stay, surgeries, and hospitalizations. Josh was well over a million dollar baby, and Moriah I'm sure has more than tripled that now. Hearing advice of people say "Don't worry about finances. Don't worry about work. Don't worry about next month, next week or next year. Enjoy every moment you have and be thankful. You guys are so strong, I could never do that. That's just the way he is." The comments from those who have never been on that other side are endless and exhausting.

All we are asking is deep, concentrated prayer for Moriah, Victoria, and Justin. Please join us...take a look at their blog and pray whatever is in your heart for these most wonderful people.

I heard this song one time driving down to Children's to be with Joshua and feel it is just as perfect for Victoria. My heart aches for this wonderful mother.

Mark Schultz - He's My Son

I'm down on my knees again tonight
I'm hoping this prayer will turn out right
See there is a boy that needs Your help
I've done all that I can do myself
His mother is tired
I'm sure You can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son

Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son

Can You hear me?
Can You see him?
Please don't leave him
He's my son