Saturday, August 28, 2010
Joshua's Journeys #42 CHARGE Syndrome Book Is Here!
I was waiting with baited breath, as Joshua's grandparents all got their books first, for our copy of CHARGE Syndrome the book that has a few pictures of our beloved Joshua! The book is fantastic...wonderfully written by experts that we've had the opportunity to meet (a few of them)at last year's conference. There are 4 pictures of Josh in the book: one of him doing some non-nutritive sucking on a pacifier, one of Mommy holding him, one post surgery when unfortunately he was not feeling all that well (the picture was supposed to show an infant in pain), and one of Mommy doing some kangaroo care (I'm covered well!) with Daddy reading a story to him. Josh has definitely left his mark on our world again. I had a hard time putting it down yesterday after thumbing through the pictures. I enjoyed all that I had read so far, it really is well written by experts on CHARGE. It was also so great to see a lot of friends in there as well...Mighty Max and Amy, Ellen, Ben, and more. If you would like to see the book, I'd be happy to brag!