Tuesday, May 19, 2009

1st Annual Joshua Kurby Charge for CHARGE 5K!


I am excited to let you know that I have been working very hard on organizing a 5K run/walk (strollers also welcome!) in memory and honor of Joshua. All of the proceeds will be going to the CHARGE Syndrome Foundation. The months of planning are coming to fruition, although there is a lot of work still to do. Please save the date (August 1st), or sign up now for the 1st Annual Joshua Kurby Charge for CHARGE 5K! Feel free to download and print the registration form here or to register online click here.

(If for some reason that does not work for you go to signmeup.com and search Kurby)

The event is also listed on mychicagoathlete.com and will be on cararuns.org (Again, search for the race under calendar).

If you'd like to volunteer please let me know and I will gladly put you on the list. Volunteers will also receive an event t-shirt! If you would like to just come out and cheer others on you are more than welcome to do that too! Hope to see you all soon!

Once you have registered, if you want to confirm your registration click here and you will receive an e-mail confirmation again.

Thursday, May 14, 2009

A Lot To Update...

I guess we've either been lax about posting, or we've been very busy. I am going to go in chronological order here of what has been happening starting with the most recent.

Thursday, May 14
Just this morning the memory tree for Joshua was planted behind our house. It is only perfect timing since today is 2 months since our beautiful baby boy had to leave. Our wonderful neighbors and friends got together to have the tree planted for us. It will be a great way to remember Joshua, and to look out our kitchen window and smile knowing that we are surrounded by love. We have learned that our neighbors really are like family. They have brought us meals, called, e-mailed, invited us out, and have made us laugh and smile. We are so lucky to have all of you.
Thank you for everyone who helped with the tree planting: The Weiss', Sole's, Sawicki's, Baranowski's, Laschinski's, Mashal's, Wilson's, Berg's, and Chakos.



Tuesday, May 12
Today Joey and Mommy went out to Grandma's house to see her and Andrew. It was a nice warm day, so we went to the park, and camped out on the lawn to watch GG Joe take out Grandma's lilac bush (very sad day for Grandma)



Sunday, May 10
For Mother's Day we were treated to a big, big brunch at the country club. Uncle Chris set us up with a great table for brunch and then took us on a golf cart tour. Of course, Daddy got his new hat from the pro shop that he absolutely loves...he says the hat was made for his head!



Saturday, May 9
Today, before celebrating Mother's Day with Nonna and Auntie Steph, we did a 2.5 mile walk for Easter Seals- Run For the Kids. Mommy didn't run, although she'd have like to, but she slowed to a walking pace with Daddy, Grandma, Auntie Christy, and Andrew and Joey in the wagon. Andrew did finish on foot- Joey however stayed in the wagon most of the time. It was great being back at Easter Seals where I spent some time with Joshua to get fitted for his hearing aids, and also to meet with the parent liason there. It is a wonderful community of people, and a great organization. Joshua would have spent a lot of time there and would have learned and done a whole lot because of them.



Monday, May 4
Now that Joey is a pretty good sitter, Daddy was itching to get a picture of him up on the arcade machine. (Don't worry one of us was always there squatting down with one hand up in case he lost his balance!)



Saturday, April 25
This post is way past due. We made it out to see the Klinger's new home. It was really nice, and we of course had great company. Joey is already looking up to Uncle Mikey and Uncle Kevin. Once Joey warmed up to Uncle Don he remembered he had a spot on his lap where he fit so comfortably. And Auntie Steph had the magic touch to put him to sleep.

A Lot To Update...

I guess we've either been lax about posting, or we've been very busy. I am going to go in chronological order here of what has been happening starting with the most recent.

Thursday, May 14
Just this morning the memory tree for Joshua was planted behind our house. It is only perfect timing since today is 2 months since our beautiful baby boy had to leave. Our wonderful neighbors and friends got together to have the tree planted for us. It will be a great way to remember Joshua, and to look out our kitchen window and smile knowing that we are surrounded by love. We have learned that our neighbors really are like family. They have brought us meals, called, e-mailed, invited us out, and have made us laugh and smile. We are so lucky to have all of you.
Thank you for everyone who helped with the tree planting: The Weiss', Sole's, Sawicki's, Baranowski's, Laschinski's, Mashal's, Wilson's, Berg's, and Chakos.

Tuesday, May 12
Today Joey and Mommy went out to Grandma's house to see her and Andrew. It was a nice warm day, so we went to the park, and camped out on the lawn to watch GG Joe take out Grandma's lilac bush (very sad day for Grandma)


Sunday, May 10
For Mother's Day we were treated to a big, big brunch at the country club. Uncle Chris set us up with a great table for brunch and then took us on a golf cart tour. Of course, Daddy got his new hat from the pro shop that he absolutely loves...he says the hat was made for his head!

Saturday, May 9
Today, before celebrating Mother's Day with Nonna and Auntie Steph, we did a 2.5 mile walk for Easter Seals- Run For the Kids. Mommy didn't run, although she'd have like to, but she slowed to a walking pace with Daddy, Auntie Christy, and Andrew and Joey in the wagon. Andrew did finish on foot- Joey however stayed in the wagon most of the time. It was great being back at Easter Seals where I spent some time with Joshua to get fitted for his hearing aids, and also to meet with the parent liason there. It is a wonderful community of people, and a great organization. Joshua would have spent a lot of time there and would have learned and done a whole lot because of them.

Monday, May 4
Now that Joey is a pretty good sitter, Daddy was itching to get a picture of him up on the arcade machine.


Saturday, April 25
This post is way past due. We made it out to see the Klinger's new home. It was really nice, and we of course had great company. Joey is already looking up to Uncle Mikey and Uncle Kevin. Once Joey warmed up to Uncle Don he remembered he had a spot on his lap where he fit so comfortably. And Auntie Steph had the magic touch to put him to sleep.

Thursday, May 7, 2009

Happy Mother's Day!

I cherish every day and every moment with Joey. Thanks for making this Mother's Day a joyful one. Here are some pictures of Joey and Mommy.



And some of Mommy's favorites with her twin boys...

Joshua's Journeys #4 Mother's Day


I have been trying to find words, any words, to say how I am feeling lately. There are no words, one thing I do know is that time does not heal. My heart aches for Joshua every day, and I miss him more deeply as each day passes. Joshua was my first born. I had wanted to be a mother for such a long time, and Joshua allowed me to do just that. Joshua taught me so much about love, the important things in life, and what it means to be a mother in every sense.


When you go through deep waters, I will be with you. Isaiah 43:2

THE BROKEN CHAIN~
~Author Unknown~
We had no way of knowing
when God would call your name.
In life we loved you dearly.
in death we do the same.
It broke our hearts to lose you,
you did not go alone;
for part of us went with you
the day God called you home.
You left us peaceful memories,
your love is still our guide,
and though we cannot see you,
You are always at our side.
Our family chain is broken,
and nothing seems the same,
but as God calls us one by one,
the chain will link again.

DEAR CHILD IN HEAVEN~
~Author Unknown~
You were a blessing to us all,
You were a special child,
And we're so glad God sent you
To be with us for awhile

You filled our home with happiness
And made our life complete
The time we had with you
Was far too short, but oh so sweet

Some things we don't find easy
To accept or understand
'Till we realize they're part of
Our Creator's perfect plan

Now it comforts us to know
You're with the angels up above,
While in our hearts we hold you close
Surrounded by our love

Wednesday, April 22, 2009

Testing Picasa with Pictures of Joey & Java

Here it is!



Oh man that's better than Photobucket!

Joshua's Journeys #3 - A Shout Out to Josh’s Godmother

Joshua would like everyone to know that his Godmother Auntie Trisha is graduating from Western Michigan Saturday, April 25!




Trisha was Joshua’s Godmother and chosen before he was even born. At the end of April in 2008, I was still on bed rest, but needed to get out of the living room prison, so Trisha, Auntie Pam, my mom, Christy, Chris, Andrew, Phil and myself went out to breakfast. At breakfast I handed Trisha and Christy (because of Joey-don’t forget twin B!) Mother’s Day cards (Chris got one too from Josh, but not a Mother’s Day card, a different one for him). I think Christy knew what was coming, Trisha read the outside of the card and looked at her mom (my Godmother) and said “I think this is supposed to be for you.” She did open it and saw that it was really for her, and with a bright, big smile said “Oh my gosh, I’m going to be a Godmother!” And with that she embraced all that Josh had to offer, and boy did he have a lot going on!

Trisha loved Josh from the very beginning and has been there for him and our family through everything. She came to the NICU to see him shortly after his birth, and tears filled her eyes as she welcomed with loving arms her Godson into her life. She knew he was going to have a challenging and special life, but Trisha was up for it all. She made him feel so loved and included in everything.

Trisha made a special trip in from Michigan to attend his emergency baptism before he was trached. She visited when she was in town at every chance she could. She was always proud of Josh, displaying pictures at school and home, talking about him to others, and making sure he was part of the gang with a Western Michigan t-shirt. She even had Alex visit him in the NICU as well. You could tell by Josh’s eyes he admired Alex's bravery being in Iraq, was impressed by him, and felt honored to meet him.

Trisha was never afraid to jump in with both feet. She visited him at home as well, and held him every chance she could. Being one of the first calls after all procedures, Trisha was always interested in Josh’s latest surgeries, accomplishments, and hurdles. She was one of his biggest cheerleaders and would do most anything for him. Upon hearing that Josh was most likely deaf with profound hearing loss and going to get cochlear implants later down the line, Trisha took it upon herself to take a sign language class her last semester of school. Most people would take a blow off class, but Trisha was always thinking of Joshua. Trisha was one of the first to hear that devastating night that Joshua passed. Without many words, Trisha knew. She had a connection with Josh, and just knew. She rearranged exams and drove in to be there once again for Joshua and all of us. Along with Chris, his Godfather, she ever so gracefully offered the gifts at church, and had one of the hardest jobs through the services of being a pallbearer and help bring him to his resting place.

Before he was buried we placed over his casket a bear angel that played music. Trisha had gotten that for him when he was baptized, it was always on his changing table, and we played it for him often, so he could watch the wings and arms of the bear moving. He smiled at it; I’m sure in thinking of his Auntie Trish.

Trisha still talks about Joshua, not only to me, but to others , for example she drove home from Michigan to look into some internships and jobs with some people from one of her classes and told them about Joshua. She is still willing to share and talk about his life, which makes us so happy and allows us to know he is living on with others as well. Joshua loves her so much and is always looking after her. He has already visited her in her dreams and is always smiling down on her.

Joshua loves you, is so proud of you, and is always there for you Auntie Trisha. Congratulations, we all love you!